Family Resources | Carli’s Angels

A place to begin

Support for your journey.

Trusted resources for people living with hydrocephalus and the people who care about them.

Find a starting point for understanding a diagnosis and preparing questions for your care team.

Explore educational materials and support for caring for a child with hydrocephalus.

Connect with established community networks and people who understand the journey.

These resources are provided by the Hydrocephalus Association.

For the people who care

Parents, siblings, partners, and friends are part of the journey. Support can be practical, emotional, and different from one day to the next.

Ask what would be helpful. Make room for preferences, independence, and the parts of life beyond a diagnosis.

A meal, a ride, company, or help with everyday tasks can be easier to accept than a general offer.

Caregivers deserve connection and understanding, too. Established support networks can be a place to begin.

Keep learning

The Hydrocephalus Association’s family guide brings together educational information for families navigating hydrocephalus.